Welcome to Living with amyloidosis

Learning to live with, or care for, someone who has amyloidosis can bring uncertainty.

This website has been created with insights from people living with amyloidosis, caregivers, moderators of online support groups and healthcare teams across Europe who understand the challenges first-hand. Their feelings, thoughts, concerns and experiences have shaped the website to ensure it is as helpful and relevant as possible for other people in the community.

Whether amyloidosis is new to you, or you are already living with a diagnosis, this website will provide you with clear, supportive information, real-life insights, and practical resources to help you understand the condition and feel more in control of your life.